Moebius Syndrome Foundation

The new May e-Newsletter is now available! Catch up on what is happening at the MSF this month. https://conta.cc/3eKZ7sB

The Moebius Syndrome Foundation would like to introduce everyone to Ashley, who lives with a condition that affects her eyes. Her advice is so profound - life is about seeing the beauty that is all around us! The best way to educate about disabilities is to discuss them, but sometimes people who aren’t in the disability community don’t feel like they know how to approach the topic. We want to let them know that it is okay to ask about disability, as this is how we create a more inclusive and educated society, Beauty is all around us and comes in all forms.

Need some advice on feeding and/or speech and how it pertains to Moebius syndrome? Renee Roy Hill, MS, CCC/SLP COM will be giving a special presentation on May 18 to address the unique difficulties that individuals with Moebius face in developing the motor skills for feeding and speech. Renee is a Speech and Language Pathologist, Certified Orofacial Myologist and has provided therapeutic assessments and program planning for adults and children with oral placement, feeding and motor speech deficits for over 18 years. To attend this free session, please register in advance by visiting the Moebius Syndrome Foundation’s new virtual events page at https://moebiussyndrome.org/events/2021virtualevents/

How do we bring up the topic of disability? I’m Zoe living with Moebius syndrome and this is my advice for talking about disability. For more information on Moebius, visit our link in bio.... For the month of May, the Moebius Syndrome Foundation, joined by myFace, AboutFace and Face Equality International are inviting our collective communities to educate about the best way to approach people that have disabilities and/or facial differences. The best way to educate about disabilities is to discuss them, but sometimes people who aren’t in the disability community don’t feel like they know how to approach the topic. We want to let them know that it is okay to ask about disability, as this is how we create a more inclusive and educated society. What would you say to someone who is interested in learning more about your facial difference or disability? Let us know in the comments or send us a video and we might post it!

Join us tonight! Are you a new parent to a child with Moebius syndrome? If so, and you need help finding resources and support to guide you, please join us TONIGHT Monday, May 10th at 4:00 PM PDT / 7:00 PM EDT for a special session. ... Vicki McCarrell, co-founder of the Moebius Syndrome Foundation, and parent to an adult with Moebius syndrome, will be directing this session and sharing what she’s learned over the past 30+ years. Registration in advance for this free session iis required, and can be done by visiting the Moebius Syndrome Foundation’s new virtual events page at https://moebiussyndrome.org/events/2021virtualevents/.

Hi! I’m Shelby living with Moebius syndrome and this is my advice for talking about disability. Sometimes people with disabilities just want to buy cupcakes without being in the spotlight. For more information on Moebius, visit moebiussyndrome.org. ... For the month of May, the Moebius Syndrome Foundation, joined by myFace, AboutFace Canada and Face Equality International are inviting our collective communities to educate about the best way to approach people that have disabilities and/or facial differences. The best way to educate about disabilities is to discuss them, but sometimes people who aren’t in the disability community don’t feel like they know how to approach the topic. We want to let them know that it is okay to ask about disability, as this is how we create a more inclusive and educated society, #inclusion #psychology #disabilityawareness