Fabry Support & Information Group

Every first Saturday in April we honor all women living with Fabry Disease on International Fabry Women’s day. This day was established to raise awareness about women and girls affected by Fabry Disease. Females are not just ‘carriers’! Join us and the Fabry community by celebrating all women with Fabry! #internationalfabrywomensday #1fdsm #fabrydisease #fabrydiseaseawareness

Fabry Awareness Month is all about telling the world about this rare disease. We hope that this year you also join us in sharing details about Fabry Disease with your family, friends and doctors and when you do so on social media, please use the hashtag #1FDSM

This year's breakout sessions are going to be so hard to choose only two! Which ones will you attend? Breakout Session 1: Dr. Rob Hopkin - Pain Management Dawn Laney - Fabulous Fabry Females... Kim Page - Nutrition Myrl Holida - Who, What, Why & Maybes of Clinical Trials Breakout Session 2: Christine Cashen - How to Stay Inspired When you are so Darn Tired Dawn Laney - Fabulous Fabry Females Wendie Pett - Move your body for Better Health Myrl Holida - Who, What, Why & Maybes of Clinical Trials Let's take a peek at Christine Cashen's session! https://vimeo.com/531376983

Happy Wednesday! #1fdsm #fabrydisease #fabrydiseaseawareness #wednesdaysquote

We are less than 2 weeks away from our annual FSIG Expert Fabry Conference! If you register this week, a registration box of goodies will be delivered to your home. This year we have a great line up of speakers; doctors, our very own Darrick Campbell and Sarah and Stephanie Nelson, and array of breakout speakers. Also on the agenda is inspirational speaker and singer from NBC's The Voice, Kat Perkins, and she gave us a few minutes of her time for this special message to the ...Fabry community! https://vimeo.com/529527854 See more

#wednesdaysquote #1fdsm #FabryDisease #fabrydiseaseawareness